We really weren't expecting to get home yesterday. We had been warned they would want to watch Olivia for a couple days on her reduced meds, but on Tuesday night she threw up her lasix and we didn't redose AND her X-ray STILL looked fantastic. So home we have been sent.
The feelings the first night home a week ago were horrible. I was sick with worry and stress. I knew she wasn't ready to be home, though I desperately wished for it. Last night was perfectly and absolutely the opposite. We got home and I actually felt HOME. I unpacked, I cleaned up, and settled in. When Andrew got home from work he mentioned having the exact same feelings. This time we both feel we're home. Of course that could change, but we'll enjoy this feeling as long as we have it.
Olivia's first night home was perfect. Her and Ella played happily all evening, Olivia finally began eating, and bedtime was the easiest it's been in years. Both girls went straight to bed and Andrew and I were able to have a perfectly normal evening at home. I checked Livie throughout the night and, though she pulled off her oxygen a couple times, she was perfect. Her sats held and she had the first uninterrupted night's rest in weeks. We finally figured out how to get Livie to take her meds without vomiting which means that much less stress as well. She has switched to tablet form. We taught her to swallow but she didn't like that so she chews them up. She says it's "lucky" aka yucky, but she'll take them. So we've had two successful doses since we've been home.
Livie is looking so much better. A good night's rest and some hydrating and her eyes aren't nearly as sunken. Also, a few good meals. The second we got home Livie asked for cheese and crackers and ate six. She was still pretty full on those at dinner so she didn't eat much of that, but she ate all her cereal this morning for breakfast and I am thrilled. Over the past two weeks Olivia has lost about five pounds. All her little fat rolls are officially gone and I am a little heartbroken. She was getting to that age of losing them anyway but losing them all in two weeks was faster than I was ready for. Maybe we'll fatten her back up, but probably not. The girl is ready to be up and moving and I think my chubby baby is gone. But my sassy one is back so I'm happy.
Fontan recovery has been hard. Much harder than the others in certain ways. This one she'll remember. This one has caused some emotional trauma. We had found a normal and our normal was rudely interrupted. Hopefully that interruption is over and we can all find our normal again. At least until the next interruption.
Thursday, July 30, 2015
The First Night Home
Posted by Sarah Turley at 8:02 AM
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