Wednesday, July 15, 2015

The Things I Forgot

With everything that went on yesterday I, naturally, forgot to put down all the information. I should really record conversations with these medical professionals.
The biggest thing I forgot and wanted to document is what Dr. Eckhauser said about Livie's heart. When he was up close and personal with it, it looked fantastic. He said her heart is small but strong. This surgery has scared be for several reasons, one being how her heart would function with this new anatomy. But her super little heart is doing well. While this is no guarantee of what our future will hold, it gives me hope.
Around the time we were getting ready to leave last night the anesthesiologist came in to check on Livie. I am so glad she did because she had some stories to tell. After we handed Livie off to her and and I broke down. We kept our heads down, cried, and rushed to the waiting room. Unfortunately that means we missed Livie's wave. She had been laying down on the the anesthesiologists shoulder (she was on versed and very tired) and lifted up her. The anesth. was worried she was going to melt down but Livie just waved to us and layed back down. Once in the OR Livie was calm and sweet. They took off her gown to get things going and Livie kept saying, "I'm naked." The OR loved her.
I was so scared that when she got in the OR she would be terrified. Being surrounded by strange people doing strange things with bright lights shining on her. I was so worried for her. But, prayers were answered again and she wasn't.
At one point last night they were tweaking Livie's meds, trying to get the right combination of pain meds and the calming meds. Too much of the calming meds can cause delirium which we think is part of why she was so upset. She didn't like the versed for that reason either. But, once we turned down the calming stuff she started to surface a bit. It was so good to see her little eyes, though they certainly didn't see me through the drug haze. Still, she got through that haze enough and said, "Mommy." Then she mumbled something and we were able to discern, "Milk in a sippy cup." They weren't quite ready to start letting her drink yet but I'm hoping that when we check in this morning they will have started giving her something.
Can I just tell you how amazing this is? With the glenn, the upper stuff is swollen and unhappy. With the fontan it's the opposite. We were warned she might not want to drink or eat because of an unhappy tummy. Only a few hours after surgery she was wanting something. Even in something so small as this, I am amazed at how strong my girl is. We may get home soon after all.

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