Today during rounds we discussed what could be causing Livie's sats to drop since the NEC is most likely NOT the culprit.
The theory is that her reflux is bad enough that whatever is in her stomach is coming back up and she's aspirating that. As of now, it's just a theory. But, if that is the case there would be two ways we could go about treating it. 1. Max out on the reflux meds. She is already on zantac but they'd also put her on another one and then also another med that keeps the digestive system moving. 2. This is the one they are recommending at this time. No oral feeds until after her Glenn. And hence me needing to be stronger.
I've never been a pushy person but it looks like I'm going to have to be. If Olivia were to go two months without oral feeds all the progress we've made with her eating would be gone. We'd have feeding issues that up until we've avoided. And that is something I do NOT want happening. Now, I've talked to some heart mom's about whether or not maxing the meds is the best thing and they all say DO IT! Some of these mom's have had TONS of trouble with feeding issues so even though they're not doctors I'm going with their opinions on this. They say, and I agree with them, that the staff here are often times looking for the quick and easiest fix without looking at the long-term consequences. I do love everyone that has worked with us but let's face it, they're human and not alway right. So, I'm going to actually have to be pushy here. I knew I'd have to fight for my child's best interest at some point. I've been lucky I haven't had to do it sooner. So, wish me luck!
Monday, August 13, 2012
Gotta Be Stronger
Posted by Sarah Turley at 1:16 PM
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1 comments:
Catching up on your blog. So sorry that Olivia is back in the hospital. Be strong. Fight for what you think is best. Good luck!!
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