The Ween

It's happening. Slowly and surely we are weening Livie's diuretics. It's a slow process but it's happening.
This morning's xray looked good so we switched Livie to oral bumex, meaning she is now on all oral meds. Fingers crossed we keep moving in this direction. But...I'm a little nervous that there is more fluid build up because Livie's sats today haven't been great. They had to bump up her O2 and we've only just tried turning her down. So far she's holding steady but seeing as she's winding down for bed I don't necessarily trust that she'll stay that way. We'll find out in the morning though.
Today Livie had a good day. She got to spend all of it with Grammy. They played puzzles, watched movies, played with play dough and had some fun. I was in Tremonton helping with my almost new sister-in-law's bridal shower and getting some much needed Ella time. Even with the little time I was with Livie today I can see she is more and more herself despite looking like Skelelivie. Her eyes are super sunken from all the diuretics and so she looks awful again. But is happy. Again. So, today was a nice simple day and we actually heard the "h" word. Possibly Monday, but I'm not counting on it.
The shower for Mckelle was a blast and it was so good to get out of the hospital and see family. It was hard being away from Livie and I worried about her the entire time, but it was so, so good for my heart to be with my Ella. Ella has been struggling slightly. Nothing horrible but she's had a hard time going to bed at Grandma's house. She was incredibly excited about sleeping in her own bed tonight and made sure everyone knew it. And that everyone knew that she was going to sleep with Henrietta (our cat.)
It will be so nice when we can get past this part of the journey. Sometimes it seems like it's never ending. Even when I feel like we're home for good we're not. I start to worry that this is our life. I worry that because Livie's recovery hasn't been as smooth this time as last that there are underlying issues. I worry that we will be in and out for the next forever and I want to scream. But, I felt this way after Livie's first surgery. This will pass. At least this time I know what's on the other side of the hospital hokey pokey (ya know, in and out) I just need to practice a little patience and faith and maybe get a good night's rest.  Ahhh, that's the dream.